The Charity

The Adenoid Cystic Carcinoma Research Foundation (ACCRF)  supports research into Adenoid Cystic Carcinoma that will accelerate the development of improved therapies and a cure for the disease. The world of cancer treatment is evolving at a remarkable pace and we are hopeful that breakthroughs in new treatment options (such as immunotherapy and targeted drugs) could play a critical role in helping ACC sufferers in the future.

Being a rare type of cancer, ACC is not in the public spotlight and does not benefit from the substantial government grants and fund-raising efforts that more common cancer types benefit from. Notwithstanding this ACCRF has managed to fund selected projects such that the prospect of curative treatments is now on the horizon. With your support, we can help make these become a reality.

For years, research into ACC treatment options was sporadic at best with limited progress being made. ACCRF has looked to change all of that under the leadership of Marnie and Jeff Kauffman, Marnie being an ACC sufferer herself. Together they have spent 10 years raising over $15m, coordinating the work of doctors around the world, and sponsoring programmes to first fully understand the biology of the disease and more recently funding trials into promising treatment options. Those working in the area are more positive than ever that a break-through can be made over the next 3-5 years. It is a relatively homogenous disease, meaning any advances are likely to benefit a large proportion of those suffering with ACC.

With the support of the patient community, Marnie, Jeff and their team are working on a number of exciting research initiatives requiring further funding. ACCRF has spurred significant advances in ACC research that bode well for the future.

Please click here to watch a short video from the ACCRF co-founders explaining where your kind donations will go.

Hope is a Powerful Ally. And Research is the Angel of Hope.